Create your own rules

✨? Happy Magic Monday My Fabulous Ones?✨

This is a little reminder from the brilliant @wonder_doodles to step out of conventions and do things our way ? This illustration also speaks to the child in me who was aways told to “Choose the colours for your picture “ rather than letting me just go ahead and colour ( my shaky hands would mean my colouring would over flow the lines, which did not go down well with those looking for ‘perfection ‘) , it goes without saying it took a while to like making art again, and it something now that I love!? Never be put off by or be dictated to about how to do or not to do something – make your own rules ????? Thank you @wonder_doodles for this reminder ?

CP Day!!!

Dear Reader,

Today I wear green for a very special reason! Nope, I haven’t got my days wrong and doing this for St. Patrick’s Day. Nope, I haven’t converted my favourite colour to green, it is still very much rainbow (though I could be just repping one of its colours just because, but it’s not that either). I am seen in green today because it’s Cerebral Palsy Awareness Day!

For those who don’t know what the heck Cerebral Palsy is, I described it as something that means my movements are a little uncoordinated . Why? Well I don’t really like the ‘why’ very much as for some, this can spark a spiral of stories in their mind when they hear the phrase ‘Brain Damage’ and don’t hear or ignore the rest of the sentence. Also another reason why I haven’t wrote about CP in this way before is because to me this bit is kind of irrelevant as you know the damage has sort of…already been done…I think that is the saying anyway! But as it is CP awareness day, I will try to explain quickly!

Yes, CP is a result of brain damage, which that occurs before, during or after birth or in childhood, and has an impact on the part of the brain that is responsible for a person’s movement and coordination. This, therefore, has an impact on one’s physical ability. The symptoms and severity of CP varies from person to person, so I can only write about my experience which will definitely be different, if only slight, from someone else. For me, as said earlier, my movements can be shaky, slow and CP can also throw in a few unwanted moves now and again. With this, there is also one huge give away when I am a little anxious about something – I am a more wobbly than usual (shaky Sallie X10!!). Sometimes my muscles can be stiff especially on my right side of my body therefore can be hard to complete tasks with my right hand, therefore I tend to do almost everything with my left. Also, as if CP hasn’t stole enough limelight-still at least it’s in keeping with its colour-, it means that the group of muscles controlling my speech also moves  a little different to someone without CP, so as a result my speech is a little impaired. This aspect in particular I do find hard sometimes even now, though my speech as improved a lot. Whenever I get into a fluster I try to spin my perspective to something more helpful and a little more positive- not many folk can get to be heard twice or more!!!

It is so so important for people with CP or with any other obstacle, for that matter, not to be defined by them-it is something you HAVE it is NOT you!!! The worst but empowering, in retrospect, stages CP is when one is a child and a lot of doubt is around about their abilities. My parents were told I would never sit up, when I was very young, but a few years after they were told this I could even take a few steps. All the ‘no’s’ I got given about being able to achieve certain things I was , with the support of my family, able to show to myself that I could. It is sooo essential to only have those around you who believe otherwise, who believe in you. With this, another thing to remember is that no matter what anyone says you can turn around and write your own story!! You can rebrand parts of you challenge to make it a little easier to manage or comprehend. For example if I’m walking with someone and happen to stagger, I may say something like “Yep, I’m showcasing my dramatic ballet again.’ By doing/ thinking like this it make things a little lighter.  Or if I am having a day where I feel that I am going a little more slowly, I try to remember that everyone0 is meant to go at their own pace as a streak of comparison tries to creep in! Life hacks are sometimes just needed!!

Over the last few years since writing to you, I have become more open and been able talk more easily about my CP.  In addition, I have also been able to learn things about CP from others that have resonated with me. Even though there are many down sides to social media, this is a big up; connecting with others who have experienced similar things to you is invaluable and, furthermore, you feel less alone. Days such as these are important as it highlights and builds awareness around a particular cause or condition of something that one may know little about. Writing parts of this has been hard. There are areas of my disability I still find difficult to express. But this is another vital factor about awareness days- they can be reflective and as a result alleviate some heaviness around certain thoughts.

Putting together my outfit for CP Awareness Day has been so very fun and this is how life usually can be, which can be easily over looked. Days like today, though it brings about awareness about a condition, they also allow one to realise that there is a lot more to a person than their diagnosis!

Here’s to CP Awareness Day!

All my love XX

Never Give Up

✨? Happy Magic Monday my Fabulous Ones?✨

This is a reminder from the brilliant @emilycoxhead that you ARE valued in the world. Never ever give up.???✨

Your Ability

✨?✨HHHaaappy Magic Monday my Fabulous Ones ✨?✨

Today to kick off the first Magic Monday of 2019 I am sending you lots of positive rainbows happy vibes from my heart to yours???

My Fabulous Ones you CAN do ANYTHING you want. No matter how crazy your wishes seem, there not crazy at all simply because you have formed that idea. Somewhere in your heart there is faith. Let that faith out shine fear. Ignore the naysayers who say you can’t. You ability isn’t defined by what you haven’t got it is determined by what you have and what you focus on.

My Cerebral Palsy doesn’t determine my ability my courage does; my courage to be resilient to try and try again . My courage to ignore doubt of others or even the sceptic that can creep up within me.My courage to ask for help when needed. My courage to be curious to find out the answer to the question ‘what if?’

What determines your ability? ???

Photography @mermaiidmairead

It’s The Little Things

✨?✨ Happy Magic Monday my Fabulous Ones ✨?✨

It’s the little things that can bring so much joy to you day and can give you so much encouragement ? @emilycoxhead happy jar is filled with positive notes and can be little pick-me-ups especially on those days that don’t feel that magic. These are the first two notes I have picked out. I get so excited every time I pick out a new one ✨Thank you so much @mermaiidmairead for this beautiful gift???✨

Spread Kindness

?✨? Happy Magic Monday My Fabulous Ones ?✨? As we enter autumn and it gets a little colder (sitting here in my woolies) we can forget how this season can also have an impact on our mental health – this time of year can be particularly triggering for people that suffer with their mental health so it’s really important that we are all aware of this ✨ In September 2016 something happened that I never thought could happen. My gorgeous sister had seemed ‘a bit down ‘ for some time but I never knew the extent or that it would turn out that she would be diagnosed with depression. No one would have known that behind her smile and the rainbows she adorns herself in that she was suffering – not even me and I live with her.

It is so important that we really make sure if the people around us are actually okay. It is only when people get talking and ending stigmas, that the importance of mental health can be kept alive. Mairead describes living with depression as like ‘living in a body with a mind that’s trying to die.’ No one should have to face feelings like this alone.

One thing we can all do is practice kindness, smile at strangers and say kind words, remind the loved ones in your life why they are so special, say and send kind messages to people you care about. If you think something lovely about someone why don’t you tell them? So this magic Monday let’s celebrate kindness ✨ If you are struggling right now please talk to someone, there are also so many wonderful communities where you can seek help such as @mindcharity and @mh_stories_ is also a wonderful online platform where you can find support ? Thank you @mermaiidmairead for allowing me to share your story ?❤️

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Shine Bright!!!

?✨? Happy Magic Monday my Fabulous Ones ?✨?

It is so so important not too lose who you are and continue to express yourself in whatever way you like ? @mermaiidmairead reminds me to let yourself shine through what you wear. She shows me just to be comfortable with who I am? Here she wears a fabulous attire, full of rainbow dreams-how amazing is this outfit?- Inspiring me to express myself wholeheartedly ?? Be yourself always ???

When The Heart Calls

?✨? Happy Magic Monday my Fabulous Ones ?✨?

This Monday allow yourself just to breathe and go with your heart. This quote is taken from my latest blog post ‘Pulling Up (Rainbow) Socks’ . It’s about doing whatever is right for you and not being afraid of not being a ‘go getter ‘ all the time. Lose yourself in something new or familiar just don’t fear it ???

Where would you like to wander to next?

Show All of You!!

?✨ Happy Magic Monday my Fabulous Ones ✨?

Don’t forget to embrace ALL of you. We cannot be a go getter all of the time and that what make us human!! We have hearts. We feel stuff. We can show others how to be strong be being open rather than buckling under pressure. I know I’m not good at this, I don’t think many are, but being reminded that we also have a delicate side of ourselves allows us to breakdown our wall a little. As @bymariandrew demonstrates these aspects gives us strength ??

Tell Your Truth


Photography: @mermaiidmairead

Dear Readers

It has been such a long time since I have written a piece on here, just from me to you. I am really sorry for this. I have discovered that I am not good a multi-tasking, dipping between book and blogger writer mode, but I am learning lots through this!!! I hope though, that you are enjoying the Magic Mondays posts and Fabulous Ones stories- more to come soon!

Recently, I have been reminded by others about the importance of honesty and to tell your whole truth. With this I have learnt that in order to grow you have to let go or let people in. This is something that I am not good at and palm off any struggles, usually with “No worries, its fine” I think that is maybe a ploy to myself to think I’m all ‘a-okay.’ But going down this stream is a little unhealthy and instead of knocking down walls, I am protecting them. One of main messages that I tell you is to keep going and you will overcome your obstacles, but with this I am not sharing why this is to believed, nor my struggle not to give up, so how can I ask you to really believe in my words? And how can I really convince you that it is not some lines I nicked from a good old Disney classic-I have nothing against Disney btw in fact I am huge fan and up for a re-run anytime, just say when!!! I know I have told you parts of my story but I have always tried to put a positive spin on this and even though I have been honest with my words, I have not told you the other parts of my truth, so here goes.

We live in a world, especially here in the west, whereby the pace of life is so fast and we seem like we are forever catching up, take for example waiting for the internet to load on our phones/computers for a few seconds is just a little thing to get us fumed up. We are always planning our next step and not fully considering what we’re doing at a particular moment. And don’t get me even started on how, somewhat isolated we are also becoming with self checkouts being nearly everywhere now, ‘self’ depicting the way in which we are going. A few years ago I watched a documentary with Joanna Lumley (who I think is indeed absolutely fabulous) where she visited a hotel in which staff were replaced by robots- has life become that busy whereby people would rather check-in, go up to their rooms without passing the time of day with a stranger, or greet a familiar face when coming down to breakfast? ( I know we all race to the coffee machines in the mornings, but that is besides the point) yep, I am waffling again!

The thing is, I am also one of those people who lives or want to live in the fast lane sometimes, I think writing is the only time I zone out,,, I guess for me it almost a meditative-like thing. Cerebral Palsy means my muscles are a little uncoordinated and reaction times are a little slower –science in school did therefore did come in handy if it was to only clarify that, yes I do have delayed responses!!

I know life is not a race and we are all meant to go at different paces. I even posted on my Instagram a few months ago about just taking a breathe and being be present and I do stand by that, but sometimes I can lead myself down a rabbit hole and forget this. So for example writing out a text or an IG post may take me a bit longer to write out then hoped or being the last person to finish a meal (now this gets on my nerves for a whole other reason- I have the biggest sweet tooth but like mumma says ‘you gotta eat every last pea first’). Sometimes I get really irritated by my pace and wish could go a little faster. Even though my love affair with writing is forever, sometimes I get so frustrated if I am having a day where I am even more slow than usual, but in my mind I am two paragraphs ahead and also this laptop is meeting the wall, I have a feeling that won’t be helpful in the slightest!!

Verbalising these struggles is not the easiest thing to do and I think writing these as been one of the first times I have explained my thoughts. Perhaps subconsciously I have thought this would be complaining or just a bid to excuse myself, telling myself I am just being lazy. Thinking about this though acknowledging difficulties, is a form of acceptance and a way to not let it be so much of a battle that we are fighting up against.

The point of this post is to say that it is ok not to only show a smiley face to the world, we all face challenges and sometimes by sharing these we can help and encourage others as well as ourselves. Keeping a lid on our thought and emotion will only create an unwelcomed explosion.

All my love XX