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Disabled limiting beliefs

Rebecca, a white woman with brown hair, is sitting in her wheelchair.00.
Image description: Rebecca, a white woman with brown hair, wears a light green, dark green, light blue, light pink, red and brown diamond patterned closed brown buttoned cardigan with a green faux fur colour, red trousers and shoes . She also wears a green faux fur hat and holding a green bag. She is sitting in her wheelchair that has peach spoke guards with multicoloured butterflies dotted around on it. Rebecca is under a tree her legs are placed over the right armrest. She is smiling at the camera

Dear Reader,

At times life can feel a bit more challenging. Sometimes we know exactly why, and at other times it can be hard to pin point what is causing us to feel this fogginess and it feels excruciating when trying to lift this weight. No matter how we find ourselves at a low ebb, our self-chatter can massively contribute to how we feel. Like a lot of people, when finding myself in tricky waters, I can be the biggest mean girl to myself and this can just intensify my thoughts and feels like I’m standing on quick sand- it is all too ready to swallow me up!

I think a lot of disabled peers will say that internalised ableism can add a bloody great big layer to some of the not so glittery thoughts that we may experience from time to time. There seems to be a real under expectation of disabled people and therefore sometimes feel like we have to work harder to be seen and heard. This is witnessed time and time again in work environments, in education systems, in the travel industry, in relationships and what this looks like, in the media’s representation of disability… it’s endless -all whereby we, as disabled people, are prescribed to the type of role we play by society. However this narrative manifests, it can enable some of us to believe that we are not worthy or good enough or shouldn’t be where we are. I’ve done this countless of times, listening to self-doubt and the cunning charm of internalised ableism way too much, thinking that I should back out of something. It’s exhausting! But rather than realising that we are experiencing internalised ableism, these thoughts can latch themselves on to us and become part of the beliefs that we hold about ourselves.

It’s important to recognise the flavour of our thoughts, where they might have come from and how we can change this up, not letting them consume us.

I’ve listed below, some of the disabled limiting beliefs that I can experience and how I try to break through them. If you find yourself identifying with any of the following limiting beliefs, I hope that you find the tips/reminders that I pair them with helpful.

  • A limiting belief that I have sometimes is in regards to voicing my rights. Enquiring about wheelchair access or saying what I need can feel daunting sometimes. I never know how requests will be received, sometimes with a more than helpful attitude and others with a huff and a puff, when, say, putting down a portable ramp, or even hearing an out and out ‘no.’ The latter two responses can make me feel as if I shouldn’t say anything or shouldn’t be there. But over the last few years I’ve realised just how much my needs and wants are valid and more than that, I deserve the right to be there just as much as the next person. This is a reminder I repeat to myself when get that voice in my head is trying its best to get me swallowing my words. Disabled rights are human rights. I’ll admit, it’s a difficult thing to do but when you start just saying how things are, the less scary it can become- do not ever put your rights second!
  • My speech impediment is something that I can be really conscious off and get a little anxious over whether people will understand me. Last year, I got tired of confining myself I wanted to give myself a bit more freedom. One day I started just to speak into the camera. I normally just post text along with photos online to express my thoughts, never sharing my actual voice, so this was heart pounding stuff. Although very apprehensive at first when I started, I began to settle into it. It showed how I, and I’m sure that I am not alone in this, can magnify things in my mind and they can feel a bit more difficult than they actually are. When I posted this video online, people were absolutely lovely in response. Note to self- don’t spend too much time brewing over something and don’t give into your own doubt! I really want to do a bit more of this in the year ahead.
Rebecca, a white woman with brown hair is sitting in her wheelchair
Image description: Rebecca wears the same outfit as image 1. Her legs are swung over the right armrest of her wheelchair
  • Another limiting belief that I have is around time. A subject that I always get caught up on. My Cerebral Palsy means that it can take me a bit more time to do certain things. Sometimes this can really bother me, especially if in my head I am a step or two ahead. In them moments I believe that I should move faster. The more I try to do this though, the less my body becomes uncoordinated and so tasks take even longer to complete. The thing is everyone is running on their own clock and really…isn’t it about deserving yourself the time you need rather than folding yourself in two to meet an unrealistic time frame? It’s time (sorry!) to start setting realistic deadlines so you won’t burn out and that you can fully focus on the task in hand without forever clock watching.
  • I think this one is applicable to all humans really and surrounds the feeling of being enough. Coming from a disabled person’s perspective, a layer of this could be due to the structure of society and how the word, disabled, is branded. Looping back to the start of this blog post and the little expectations that non-disabled people can have of disabled people, it can make disabled people doubt themselves or believe that they need to prove who they are in order to be seen as enough. It was only through my twenties really that I realised that I didn’t need to do this. Discovering the social model of disability, which says that people are disabled by societial barriers, was a game-changer for me. I learnt that my disability wasn’t at fault. It was the world around me.  I didn’t need to change. I didn’t need to prove who I was. It’s really easy cheesy to say try and not be moved/powered over by stigma but really just being yourself is all you can be. You are enough as you are.

I hope that by sharing some of my limiting beliefs and I how am trying to break them down a little and not letting them have as much power, perhaps it’s given you food for thought as to how to tackle your own limiting beliefs. And remember there just beliefs, not the truths

All my love XX

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It’s okay to like marmite

Image description: Rebecca, a white women with long brown hair, sits on a garden step surrounded by plant. She is wearing a knee length dress with green , red , pink and orange flowers on it and a colourful beaded necklace.

Dear Reader

Lately, I’ve been thinking about the way thoughts, ideas, views can change and oppose perspectives and reflections and/or how perspectives can swing between the two.

I used to think that was a bad thing. That how could we be deemed unreliable if we changed our mind like the weather? That it made whatever we said invalid. As someone who has a track record for changing my mind and feeling guilty to have this trait, to say that this is actually okay is actually quite liberating and proud moment for me. There are thousands out there with a similar mentality to me and we often get branded as wishy-washy, uncertain and sometimes, as my family cat Queen T is literally and it’s one of the many things I love about her, a sit on the fencer (though with my balancing being one of my tricker skills, it’s not as quite a mundane task as one might assume). I would like others like me know that hey! You, me, we are completely fine, we don’t need to change.

I’ve played with these thoughts for a while now, with various observations and experiences leading to these reflections. I first shared my ponderings on uncertainty on my Instagram after a trip to Florence in April.

I was between two extremes. The first between fury and frustration at the inaccessibility and the constant excuse being given that it was an old city. It’s not about eradicating history, but it’s about making accommodations and edging towards inclusion and not maintaining historic believes that disabled people aren’t active members of society.

Yet on the other hand, I was struck by the superb detail of the old around- can I really say that I want a fairer world for disabled people but still marvel at the things that disables us?  Or is this me with my learnt thinking that you can either be one or the other, not both. That things are either black or white, not grey. That like marmite, you either love it or hate it, there is no in between.  But perhaps you can be both. Perhaps things can lie in a grey area. Perhaps you can like marmite. Perhaps. Perhaps. Perhaps.

These reflections extended further when I saw the first ramp on the second day. The joy, the relief, the unheard welcome.  It had me feel that sense of gratefulness that I know I shouldn’t feel. Grateful to access a public building, grateful that simple rights are being met? Does this reading this sit well with you? How often to you hear non-disabled have thankfulness for entry in to such places? Reader, it’s more likely that the number of steps will get criticized. Yet in this moment, I felt so happy that I could explore with ease and go about my day.

In recent weeks, my thoughts have become more stretched. I want to thread carefully about the wording of this because I still don’t know where I sit with it but as some of you may know writing for me is my way to try and makes sense of things somehow.  And it revolves thoughts around independence.

For the past few weeks, I’ve experience quite debilitating back muscle spasms which meant I needed even more help than usual. Like many, I have learnt through the years that it’s okay to receive help. It certainly does not make you lesser- everyone has different ways of doing things and personally I love working as part of a team. Obviously, though it was a little frustrating as I just couldn’t get on with things.  As I’m slowly starting to get back to some kind of routine and relieved to get some of my independence back.

I sometimes feel like when we celebrate independence, it can feel like we’re advocating for being as non-disabled as possible, writing disability off as something bad. But it’s not about that- it’s about feeling and doing what is comfortable for you, and simply doing what you need to do for you. As I can now take a few steps with a bit of ease, my mind springs to What would Inspiration Porn say? A thought that tries to suppress my joy. Something that says I’m doing something ‘in spite of my disability’, with the toe curling saying if a disabled person can do something, you certainly can. But it’s more about… getting back to my normal, what’s in my scope. So I want to reject this thought. I want and need to celebrate about feeling good again. No one should take that away from you, so don’t let them

The point of this post is to say it’s okay to be on both sides of the coin. You don’t have to have a fixed idea on something, it can change, it can be fluid.  You don’t have to grip firmly to one idea

It’s okay to like marmite

All my love XX

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Four reminders

Rebecca, a white woman with brown hair, is sitting in her wheelchair
Image description: Rebecca, a white woman with brown hair, is wearing a pink and orange closed buttoned cardigan and pink trousers and shoes. She is sitting in her wheelchair that has peach spoke guards with multicolored butterflies dotted around on it. She is on a bridge with a lake running underneath

Dear Readers,

Woooo! It’s been a very long while since I wrote on here! In fact the last time I wrote on here we were transitioning from summer to autumn and now a whole other season has passed.

The reason. Well really, I have no excuse only to say that I’m not a very good juggler! But for a while now I have been itching to get back to blogging things and today is that day!

I want to write here, a few little notes for both you, and also I, to keep moving forwards or even to how we might go about being at ease with where we are- an underestimated thing and something I find personally hard to do. I tend to overly self-access looking for things I’ve missed or not executed as well as I should have or what’s next (attempting to ensure that the next thing leaves no room for errors). I know sometimes we can get ourselves in to a slump in one way or another and the other day I thought about what are those things that help me, and I wanted to write them here.

So, here goes  (btw these.. ‘tips’ are just me thinking out loud- so use, don’t use, add remove or even ignore.)

Do more of what you love and reframe from internalizing ableism

A lot of us have a guilt thing around pleasure and feel like we need to ‘earn’ enjoyment. The contents of, and how much, enjoyment we ‘allow’ ourselves to have will be measured by how much we’ve ‘worked for it.’  We have become our own unnerving headteacher that everyone dreads (Matilda’s Mrs. Trunchball  type).

As a disabled person who needs more time to do things day-to-day, I feel sometimes I should be doing twice as much in order to seek reward. Though we know this thinking is nonsense, playing into that ableist view, and that everyone goes at their own pace. So for those of us that identify as disabled or chronically ill this is a reminder to not chew on ableist words. You deserve, we deserve, just as many ‘nice’ moments as non-disabled people

It could be spending time with family and friends, exploring new places, reading a good book without thinking of what we could be doing or anything else that puts a smile on our hearts.

Comparison’s a thief

We don’t have to look far before we find that we are pitting ourselves against someone or something else doing something better, or leaves us, in whatever way, feeling less. I mean we all like to push ourselves and make improvements if we want. But it can also make us overly self-criticize, which can stop us on our tracks.

So how can we stop this? I don’t think there’s a definitive answer. But I do think a part of this is about being more aware when we are comparing ourselves and that the thing that we are comparing ourselves to something that is bigger and complex than what we are perceiving. Social media is a great example of comparing ourselves to someone else’s photos, status updates and snippets of their lives. But the same people also have parts that they choose not to share and are more than likely doing the same- comparing themselves to another person.

So we need to try to prevent ourselves from going down the rabbit hole and just remember that what we think is not the complete story and that everyone is just trying their best, including ourselves.

Connection is key

Humans are social beings. The amount of which will vary though, with each individual having their own unique social battery. Some peoples’ runs flat quickly if they socialize too much and need time away to charge, while other social batteries can be sustained and even be fueled by socializing.

I don’t want to sound greedy here, but I think I’m a bit of both. Sometimes i just need space and other times being with others is more than a want, but a need. I believe that perhaps our social battery is dependent on how and who we are spending it with.

No matter which way we flip I think that when we are not feeling our best a lot of us will turn to a trusted person or people in our lives and also when things are going well.

Loved ones can always energize me just by being with them…. I hope this can be the same for you too and if not let this be a reminder that it’s okay to step away and reconnect with yourself.

Get out of your own way!

Okay, this is another cliché but it true. We spend so much time thing about What ifs and worrying and talking ourselves out of things that in the time which we are doing all that, we could have done the things that we are putting off. This is a whole lot easier saying than actually doing, but by trying to be more of a doer we can break the habit of sabotaging ourselves. So before you completely talk yourself out of doing something-just go for it!

These are a few things that help me get out of my own head sometimes. I hope these can help you too.

All my love XX

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Disabled Expectations Among Other Things

Image description; Rebecca a white woman with brown har, wears a pink jumper khaki green jeans , a purple scarf and rainbow shoes . She sits in her wheelchair that has peach spoke guards with multicoloured butterflies dotted around on it.. Rebecca is on a bank by a lake.

Dear Reader,

I started writing this post early in September and it strangely took me a while to form my thoughts. Whilst I speak about the changing of seasons-summer to autumn-, I think some of the reflections I make can be applied, somewhat, to any time, to one’s own personal seasons too. This is why I have left the wording as it is. I have truly enjoyed losing myself and discovering as I wrote this piece. And so I hope you are able to go with me on this and also enjoy this read.

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September sees the last utterings of summer. The shortening of length of light by a minute each day, as September ages. indicated that this warm season is coming to a close. Some of us grow back down into routines, after a period of perhaps adventure or a simple pause from the daily workings, if only a while.  Maybe the sun, radiating the last of its warmer rays, is soothing us back into our everyday, or maybe trying to echo an element of hope, if it didn’t have that sparkle that you thought it would have- that everyone says it has.

For some of us summer is the season where life seem the most vivid and has an abundance of colour and everything feels that bit more possible…rose-tinted glasses much? I think so. How many times have you heard recently the phrase ‘holding on to summer’? I know I’ve heard this quite a few times in recent weeks. Don’t get me wrong we all want to spend times in the warmth of the sun, but I think that something about fixating and trying to anchor ourselves on something that is fleeting will always leave us defeated; the passage of time will always win. This is a message that has rippled through out the U.K and beyond, with what’s been in the news recently- that, for a lot of us, draws on parts of our own lives, somewhat, making us reflect.

Wow! That got deep so quick! I don’t know but it’s something that I’ve thinking a lot about recently- that the volume of life left to pass in the timer is constantly shrinking. I say the above like I’ve aced and surrendered to the unknown, but that could not be any further from the truth. If we are going full on confessional mode-the unknown is my biggest fear.

I know the unknown has its sparingly exciting charms about it, like discovering a new dish(linguine is a recent for me and is all kinds of delicious) or exploring a new place (especially if disabled access guaranteed) and not knowing what you might find, or how a piece of work might take shape, like writing this, or the anticipation of what will happen next in Virgin River (new-to me swoonworthy series I have found on Netflix) that kind of thing. But the bigger stuff that plays on your heart strings and have unsettling tones is something that has me reach for the duvet.

For me summer as an air of nostalgia to it and gets me in a reflective mood. I toy with all of the unanswerable questions like ‘what ifs’ and ‘what could have beens’. I am also increasingly aware that in just a couple months’ time will be entering my last year of my twenties-I mean it would be a worry if I didn’t know my own age, good lord I would be more infantized than I am now, by others, as a disabled person- but that’s a whole other story. What I mean is the heart pounding thoughts of not having my ducks in a row, or not and being the person that my eighteen-year-old self thought I would be ten years on.

My teenage self-romanticized what young age adulthood would be like, I think most of us do at when we’re young. We want independence, we want to be seen in our own right and taken seriously. More personally- I thought that I would stop being infantilized but spoiler alert, I haven’t. I was naive to think disabled adults would be treated the same as non-disabled people.

As a disabled woman, the expectations which I am held to are different. You think I would be slightly relieved to be released the from expectations, but in fact I am annoyed at this. Why the hell should I get off lightly?

Do you remember egg and spoon races at school? Well my ball never fell off my spoon… confused? You would be right to. No it’s not that this activity that magically calmed my tremors, in a strange contradictory technique, it actually made them more aggravated. The truth was that the ball was stuck to my spoon as on its own the ball would fall of within two seconds. I did feel bad for cheating- if it’s any consolation I would always come in one of the last places-, but I guess my teachers just wanted me to feel involved somehow and that was their way of doing this.

My adult self is spilt in two about this scene on the one hand it allowed that kid who was the only physically disabled kid in her primary school not to be left out and feeling the odd one out. However, the other part of me looks at the message this sends out for the bigger things- that disabled people goes through life, and must be treated differently. Yes in some respects we do navigate the world that deviates from non-disabled people i.e some of us need an extra pair of hands for certain activities, or accessing a building via a ramp and not a staircase. This is only seen as different because society views it like this, not incorporating this into the mainstream. Another message from this says that disabled people cannot be seen to drop their ball. Because society views disabled people with a fragile lens, and so to everything they can not to ‘let’ us break, no matter the cost, cushioning us from the world. And also because ‘dropping the ball’, so to speak, would go against that other bizarre narrative that holds disabled people on a pedestal (goody- two-shoes type thing ) and says that disabled people couldn’t possibly fail and oversee our humanness and need to fail-and not being over or under berated for this- not that one should ever be judged for their failures.

So if we use the analogy of the egg and spoon- us, disabled people, being the egg, the spoon being the rest of the world, we need the glue, being the stereotypes or ideas about disabled people, that holds the egg (or us) in one fixed position to be eroded and let us be trusted and encouraged to just be . We need to be seen as humans, that can fail.

I digress. As I have written soo many times before it took me years to speak openly about my disability, unlike now whereby I could write about disability till the cows come home! I wonder if I was more willing to embrace my disability sooner where would I be? Would it have led me to taking different pathways? Of course, I will never know the answers to these questions and this pattern of thought isn’t helpful either. It’s an exercise though I’m sure pretty much everyone knows the mechanisms of, which may include pondering over what another life led could have looked like, missed opportunities, saying no rather than yes or vice-versa perhaps even mulling over past regrets. Still, this reflective practice will be unique to everyone who does this.

I don’t think there is any definitive resolution to these woes, as I think it is something that is naturally reoccurring and is a part of what it is to be human But I think in these moments of thinking back, growing quite and almost yearning for time gone by, we can’t let these times be all consuming and keep us fixated on the past.

So as we approach the end of September, the end of summer and the start of autumn, instead of trying to keep a hold of what is moving away from us, to try and release the grip around this. As I said above time will always win, and as much as we can feel defeated we can’t always perceive this character as an enemy. The time we have at this very moment can be used in any way we like-how cool is that. How we use it, is up to us!

I hope this has provide food for thought for you as we transition to the next season.

All my love XX

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Getting comfortable with being uncomfortable: I’m not sure I can.

Rebecca, a white woman with brown hair is sitting on a step in the garden.
Image description: Rebecca, a white woman with brown hair, wears a chiffon summer dress that is mainly with black and mint green squares and flowers dotted around on it. Rebecca is sitting on a step in the garden surrounded by plants.

Dear Reader,

I am writing this, after needing a bit of rest for neck/shoulder pain that left me looking some kind of frightened hen when they are uncertain of their next move or something, every time I turned my neck. I’m doing lots better, taking things slow and getting back writing is making my heart sing.

This is the thing, as unbearable as actual pain can be, so too is the less physical pain. By this I mean, having to pause from the daily and resting, whilst wrestling with thoughts of wanting to get on with the things that are buzzing around in your mind. This is before we get into the guilt tied to this- switching on an episode of Good Witch (total feel good, magic vibes), rather than sitting at my desk working on pitches and other writing bits and bobs-. It’s the whole thinking the we’re human doers rather than human beings thing, that I think mentioned before on here. No matter how many times we remind ourselves of this, all the thoughts of the things that we think we should be doing keeps prodding us.

I guess one benefit of this time of rest was that I could read a few books that was in my ‘to read’ pile. One of these books was Speak Your Truth by Fearne Cotton . A fantastically insightful book about finding your voice and say what is true for you. I think this is a hard one for most of us and like Cotton says, especially for British people the tendency to be polite overtakes and our we end up holding in our chest all those unspoken words, perhaps putting other people first and not honoring ourselves. This is something that felt like a huge theme for me personally this year, so it goes without saying it triggered a lot of thoughts.

There was one point especially in the book that had me do a spot of self-reflection. Cotton asks her Readers “When have you been silent?”. Obviously, as with all big questions, it sparked a pattern of thought. I reflected on times when I haven’t spoken up when I know I should have. Moments when fear has taken charge and have dictated socially appropriate responses abandoning my own thoughts and feelings. Situations where it felt like I’ve lost access to the library words, which on the one hand can set us free but on the other can be so trapping. There have been a few moments this year where I felt like I’ve stepped up to the plate and voiced my thoughts, but there have also been others when expressing myself felt too much, experiencing unease.

There’s been occasions when passing comments were made or I felt unfairly questioned, and it felt as if I retreated in to myself for that moment, frozen on the spot, unsure which way to turn only knowing that I wanted an escape route. Like stumbling on a thorn, instinct is to go into protective mode and perhaps cover the injured area with your hand. Similarly, when in situations where I feel judged, dismissed or unseen my protective mode has me growing quiet. It’s a strange thing when we think we are so in tune with ourselves, but then a situation or rumination of words can leave you unsure, or, as Cotton explained, it can reveal dissonance within yourself. It’s only on reflection I, like many others, think of all the coulds that should have been said on my part, mind again on over drive.

Though I mustn’t forget those moments, where I have spoken up and voiced my thoughts. Written word has always been like a best friend to me, especially when trying to express more of the harder stuff. So this companion was a tremendous help in a couple of different situations this year. It gives me time and space to work out what I want to say, respecting other people’s thoughts as well as my own. Articulating myself in this way in occasions where saying what is true for me allows me to get around the instant thought of this is uncomfortable and work out ways to move through it. I’m not saying it’s easy. The delete key get its fair use. The flash of the cursor occupies the same space again and again. Every word seems to have this inability to convey my thoughts and when I do finally manage to put together some words, I am still hesitant. Here I must put a side this learnt behaviour of keeping quiet because how is anyone going to know how I feel if I do and I know that no one else can say how I feel or think but me. Now more them ever the word needs us to speak up.

I titled this post “Getting comfortable with being uncomfortable” and as I write, trying to get closer to my answer to this, I think about what is comfort to me-what do this look like? My immediate thoughts go to that feeling in the evening when I get into my PJs and taking of my make-up if I’ve worn any that day, having a cup of tea (preferably with cake), round people that makes me happy, our cat Queen T and her sensationally soft fur coat and her soothing purr, Robins, Mum’s apple crumble, my Sister and I belting out 90’s tunes (nostalgia central), with my bestie and playing googly eyes (don’t ask-for another time), writing this post (doing my prescribed exercises every few sentences), taking time off social media the last couple of weeks (I love connecting, listening to others and sharing my voice, but sometimes it’s just good to catch some distance), more tea (cake only required if it hasn’t been granted with the first mention of tea 😉 ), watching clouds form and reform in unique shapes as they pass in the deep blue sky, days when barriers towards disability aren’t existent (but this leads to a whole other topic), being by the sea, being in the mountains (please don’t ask me to pick between them). The list is endless.

All these things that I listed are things that are filled (mostly) with peaceful moments both externally, with little to no sound, and internally, really feeling held and experiencing a sense of weightlessness and captures my introverted heart somewhat. I guess my comfort is synonyms with the feeling safety and without worry and so I think sometimes when voicing those things that are perhaps hard to say causes my insides to do a summersault, bringing with this a feeling of ambivalence. It seems to me that sometimes remedies for emotional unease are more difficult to locate than for a physical ailment. For example, the warmth of a shower or lathering on Deep Heat as I’ve been doing for muscle soreness lately is almost instantaneous, if only a while, but there is no quick, easy or painless aid, if you like, for things that play on your emotional strings. It requires you to go against your automatic response of shutting down.

I’m not sure if I will ever be completely comfortable with speaking my truths, especially when it requires all of my might. I’m not if I can even completely own some of them.  I don’t think I’m alone I in this. Maybe learning to be comfortable in discomfort isn’t the goal. Maybe we just need to get through these times…though we might not feel a total breeziness when speaking about the tricky things, it’s important that we do. Perhaps in time it will then get easier through move through discomfort, the more we do this. I think this thought could be a comfort in itself.

I hope some of my thoughts that I’ve shared have resonated with you and have helped in some way. I also hope that these writing have alleviated, somewhat, the urgency and view that you need to get comfortable with being uncomfortable-if you can’t get on board with this. Just do what you can, that more than enough

All my love XX

Posted on

A New Year Ramble

Rebecca sitting forward in her wheelchair
Image Description: Rebecca, a white woman with long brown hair, wears a green, blue and yellow velvet long-sleeve top and yellow trousers and shoes. She is sitting forward in her power chair, resting her head on her left arm. Behind her is a white wall.

Dear Reader,,

Last week I wrote something on Instagram about not living up one’s expectations put your own. This time of year there is such an emphasis on starting a fresh and ‘bringing the best version of you’, but what if you don’t want to do that? Or feel fine as you are? Or just think that whole thing is just a bit anxiety provoking?  There is so much hype around a ‘New Year, new you’ and comes with an intense pressure for self-improvement, but if we’re honest this whole fascination with newness is just temporary-so why do we do it to ourselves? We are already are dealing with a lot navigating this human experience, so why burden ourselves with these unnecessary thoughts?

When I returned to writing after a few weeks off, I felt a bit distant in relation to this. I’m unsure why. It felt like the weather reflected my mood. It was grey and wet. I felt grey and a little like Ms Misery Guts. I did the exact opposite of what I wrote in this post and I thought about how I ‘needed’ to just to be a lot more than what I am, to do more-what? I don’t know but there was a hovering question mark that I just couldn’t bat away.

I then did something which I never do, what all the creative greats say never to do: sat and waited. Literally. I waited for an idea to come to me. I don’t even know why on earth I did this. I know this is not how this process works. In a speech that Elizabeth Gilbert gave years back, the way that she described the act of making art translated to me as a union between the person and creativity-defining creativity as separate to the person-. The person and creativity both playing a part, both working together to produce something. So by me sitting in front of my laptop not really trying, the ceremony of creativity was never really going to commence, not putting myself in service mode and doing my part. I was holding myself hostage, not allowing myself to dance with creativity. I was looking in from the outside about the fascinating wonder and vibrancy of this activity and just yearning to be part of it. All the while forgetting and overlooking that I am a part of this process and so in order to feel the buzz of creativity, I need to work for it- more accurately work with it!

This hard focus on creativity, throwing an internal tantrum hears a voice full of doubt and kidding oneself out of what it is that there doing, and it makes it feels like the cogs are stubbornly stationary- the solution?  I don’t know if there’s one big solution. I think it’s more about trial and error, being gentle and keep going-something that perhaps at that moment feels a bit difficult to do. 

This perspective could perhaps be extended to other aspects of life. Most of us have this incessant need to get things right and it can prevent us from enjoying what we’re doing too. Again there’s no quick fix. Though I do think that it again by just doing little bits and not getting hung up on the idea of perfection and go with our gut perhaps we can breakthrough this.

I guess the point of this post is to say just take your time and try not to be pressured or think that you need to live up to some sort of expectation. Do things your way and not in the way that you think how things should be done. And finally don’t let sense of New Year trick you in to thinking that you have to change something, because you really don’t.

All my love XX

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Untitled

Sunset in a field, with the sky shades of blues, pinks, oranges and yellows
Photo taken by @mairead.may
Image description: Sunset in a field, with the sky shades of blues, pinks, oranges and yellows

What am I thinking? I don’t know what to write. My thoughts are even obscure to me. Am I being to personal? Too impersonal? Finding words too distance to capture my mind.

Since the passing of Dad in November, it’s has been an incredible challenge to write any thoughts. It’s as if the craft I known that gives me a sense of solace and releasing nature has somehow faded, as I find it ever harder to form sentences and orchestrate the right words. All feels too out of reach. Too foreign. But here I try to piece together some reflections, some which may be a little disjointed in places.

People say so casually, ‘Life is too short.’ ‘Life is too short’ to self-persuade to make that purchase on them beautifully decorated jeans that you keep day dreaming about. ‘Life is short’ as a bid to talk yourself in to a day off from the daily hustle and just retreat in something that gives pleasure, rather than just doing it anyway. ‘Life is short’ to banish the guilt spindle that your mind plays when you reach the end of a crisp packet. ‘Life is too short’ when you try to put out the fire over the woes you have as you try to look at the bigger picture, or try to convince someone else too to worm your way out of something. ‘Life is too short’ is said in response to just about anything to reduce ambivalence or fear over something.

But life is too short. A snap shot of time that we experience. A period of time that we forget to cherish. A time that its fragility is only made known when we have witnessed the gut-wrenching truth of this once fleeting statement.

As I write this, I wonder what Dad thought of time, how he perceived it, what he would have done differently and what he wished to do. Life and time did not play a kind hand to Dad. From a young man Dad had Multiple Sclerosis, in which consumed more and more of him over time, time that became not his own.
Dad was a proud strong Irish man, a man of the hour: whether that was in his young days and pulling tug of war (I was told that team players were always excited when Dad was in their team as a win was likely a guarantee), or rounding sheep, or, a little late, making our house a home with his initiative mind, or just feeling safe in his arms when I would crawl excitedly over to him, as a child, when he came in from work. It is fair to say that when I went to him panicked that the cover of a favourite book had become detached from its spine, it was a doddle for him fix. A strand of cello tape later and he would say with a proud smile, that he could alleviate that panic I had, “As good as new” as he handed me back my book.

This strong character is something Dad will always be known for by myself, my family and just about everyone who knew him. Time took away a lot of things from Dad, but strength was not one. He would put up the toughest fight no matter what came his way. This is one of things that truly want to honour and keep alive- the sense of focus and determination he had- as I go about my days.

The aftershocks of Dad’s passing will be forever felt, as myself and the rest of my family try to navigate this huge space that has been left. There are so many things I want to say to Dad and will want to in the time before me. Finding comfort in little things has been something so soothing. Comfort in thinking what Dad might I have said. Comfort in thinking about his laugh. Comfort in signs to tell me that he’s nearby , like the sight of white feathers or seeing robins (his favourite birds) or a blue sky or a rainbow or the moon (when I was a child I would always ask him to take me out to see the moon before bed). Comfort in memories and sharing these with others, keeping him forever alive in some way.

Loss is an inconceivable thing and something that will always feel in this vein. It is so very hard to think that I am here writing this post. I guess the thing that I can only say here is that if you are experiencing something similar, of a loss, I hope you can find comfort however small it may be.

XX

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Seeing Yourself As Enough

Dear Reader,

Ever get that feeling that you’re not enough? That you’re not doing enough? That what you are right now and who you are is not enough? Well this is something that can honestly feel quite lonely and depletes one’s energy and when in such a mind-set….the hope of this turning round does not seem like a move that can be made. However it’s me who is writing this post and even though I can annoy the crap out of myself being a positive Polly and sometimes just wanting to see the volume of water that is in the glass in whatever damn way (without a psychological explanation being attached to this), it is true that this is not a feeling that is felt by a singular person- it is experienced by many.

It feels like I’ve gone off into the deep end, I didn’t mean to here but fear of not doing enough are thoughts that I have been experiencing of late. Back in May I shared on my social media that I had been experiencing pain as a result of my Cerebral Palsy, which meant I couldn’t do very much at all for a while, and for someone like me who always wants to be a busy bee this was kinda hard. Since then these aches have been on and off depending on how much I’ve been doing. It’s that knowing that I’m not doing, not continually moving forwards, which at these times are my more prominent thoughts, the insistent chatter of what I could be doing clogs up the ol’ mind. Somehow this has more of an importance than it did before. I guess it’s a classic case of when you can’t do something, you want to do things even more with the imagination running wild with ideas. Ohhh how the mind chatters!

Sitting there with all these thoughts was kind of like toying with someone else’s story-it wasn’t I who was living out that day, it was a character I created in my brain. A character with no flaws who navigated a flawless day-ironically, this whole idea is flawed! The thing is by participating in such creativity and building a picture of a person of who you think you should be kind of puts one into self-destruction mode, picking out parts of oneself that aren’t enough, that they should be more focussed- basically berating anything that makes one human-the mistakes, the getting things wrong, the going at a different pace to everyone else, the not living up to expectations people or even you had of yourself … the list is endless. All this obsession over what you think you don’t measure up to will only make you feel worse.

I do think now more than ever we need to be kind to ourselves as well as each other. This year has thrown everyone sideways in one way or another, yet we can find ways to tear ourselves down and tell ourselves that we should be doing more or that we’re not doing what we should be. There is no ‘right’ way to think, but if we just found a way not to be too harsh or expect too much of ourselves and be a bit more gentle maybe we would start to feel a little lighter in a world that already seems so heavy. I guess what I want to say is that it’s okay if you are not where you thought you would be, focus on where you are and the pathways that could lead from there. It goes without saying that everyone will experience peaks and trots and just because you find yourself at a low, up against a challenge, facing a flare up, it does not mean you can’t get back or that it will be like this forever. I am saying this to you as well as myself, do not let these not so great days define who you are.

There’s that saying ride the wave. Although this can seem like a fleeting statement, it actually does have some merit-stay with me here. Instead of fighting what you are experiencing and burying yourself down some dark rabbit hole, I started to realise, when I had to take a break from things that rather than focusing on whether or not I was measuring up to being enough or trying to justify to myself as to why I was not doing thing, I started think about how just resting and being more present could just help the future me: if I rest now, I’ll be able to do more later.

All my love XX

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A Call to Change How Disability is Seen

Dear Reader,

It is funny (not the haha kind, more the stop and think kind) how the world is sooo pent up and focusing on fixing things, solving this by pretending they are not there instead working around them. I guess that would require too much ground work. This idea becomes dangerous when these things are not just things but are people and the outlook remains the same- the focus being ‘how can this be fixed’ or ‘made better’. Well, spoiler alert, this can’t be fixed, made better or be shunned away through any other ableist ideologies-how about…they you know…turn that frown upside down and realised that it’s more about people working with what they’ve got.
Sometimes disability is seen as some sort of disadvantage, and something that instantly categorises people with disabilities as ‘the disabled’ as if they’re a faulty model. As a person with a disability, it is all too familiar and expected that I will see someone’s eyes widening and their voice reach a new octave as I share a little about who I am, flabbergasted that I am just as human as them. However something in their behaviour says that this stereotype of disability is still being brought into.

Though I write and do my part to raise awareness of disability I do not know quite how to tackle one’s perception of this. Dating back to long ago people with disabilities were…let’s just say there was no voice that represented this community so I guess this stereotype was the only reference point. But this stereotype was only formed because there was no voice, still the only voice that was heard were men in power(sometimes I do wonder if times have changed). Even though the community of people with disabilities has come a long way, with campaigns around inclusions being had, it still feels like we haven’t reached our peak! When I ask myself how I can go about furthering my message, the only possible solution is to keep saying how things are for me, keep speaking out, keep writing stuff like this, call out when people show discriminative behaviour and do not let other people’s words and actions have an influence on how I view myself.

It is not only how people with disabilities are approached and talked to that needs to be addressed, but what is also needed is for society to be accessible and all round inclusive-some may call it ambitious, I call it essential! As I said above, the world can go around fixing things by pretending that they are not there, by this I mean by places STILL not accessible. Checking if somewhere is, for me, wheelchair friendly should not be a part of my ‘check before you travel’ routine. On this note: London underground! Now I know it is at the height of hustle and bustle but it is also the most inaccessible and my question is why? We’ve got technologies for the more unnecessary such as being able to see on your phone who is at your door, so why can’t some investment go into technology to engineer public transport to be just that transport for PUBLIC use, transport for EVERYbody?
I’d love to say that the physical form of accessibility that the only an area of that needs stark improvement but this is just the start: how institutions relate to people with disabilities, be it in education or in, or accessing, work need to undergo a major change in order for the same opportunities to be given to everyone. Therefore this means people with disabilities receive equal treatment to everyone else without having to go to extra measures to prove themselves, that extra thing that if disability was taken out of the equation these measures wouldn’t have to be taken. I do wonder if people without disabilities were questioned, were put through tests and were observed in the same way, what would be the response of these people? Would they understand the implications of ignorance? Would they finally see people and not what people have or haven’t got?

I am writing this as I no longer want to be silent and pretend that I am not moved by the inequality that is blandly obvious in society, a society that is fractured and unable stand in solidarity with those with differences. I am one of many with these thoughts and I hope that others who resonate with these words are able to feel empowered to share theirs. But not only do I hope these voices come forward, I also hope people who are on the other side of the coin, who don’t have a disability, that these words play a role in their understanding in how such judgement feels. Perhaps this understanding will also go towards changing their perspective and actions towards disability!

All my love XX

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This will pass

✨ I hope you can find magic this Monday however small ?✨

Illustration by @emilycoxhead

Image description: words in black handwriting that reads: “It’s okay to feel flat you can’t ALWAYS bounce back CONVERSATIONS can be TOUGH doing the RIGHT thing isn’t always enough . We can’t have HAPPINESS without a little pain hard times will pass again & again- emily coxhead.” These words are on a illustrated lined piece of paper. This paper is on a blue background with a illustration of a rainbow in the center. Illustration is by @emilycoxhead