Posted on

Disabled Expectations Among Other Things

Image description; Rebecca a white woman with brown har, wears a pink jumper khaki green jeans , a purple scarf and rainbow shoes . She sits in her wheelchair that has peach spoke guards with multicoloured butterflies dotted around on it.. Rebecca is on a bank by a lake.

Dear Reader,

I started writing this post early in September and it strangely took me a while to form my thoughts. Whilst I speak about the changing of seasons-summer to autumn-, I think some of the reflections I make can be applied, somewhat, to any time, to one’s own personal seasons too. This is why I have left the wording as it is. I have truly enjoyed losing myself and discovering as I wrote this piece. And so I hope you are able to go with me on this and also enjoy this read.

­­________________________

September sees the last utterings of summer. The shortening of length of light by a minute each day, as September ages. indicated that this warm season is coming to a close. Some of us grow back down into routines, after a period of perhaps adventure or a simple pause from the daily workings, if only a while.  Maybe the sun, radiating the last of its warmer rays, is soothing us back into our everyday, or maybe trying to echo an element of hope, if it didn’t have that sparkle that you thought it would have- that everyone says it has.

For some of us summer is the season where life seem the most vivid and has an abundance of colour and everything feels that bit more possible…rose-tinted glasses much? I think so. How many times have you heard recently the phrase ‘holding on to summer’? I know I’ve heard this quite a few times in recent weeks. Don’t get me wrong we all want to spend times in the warmth of the sun, but I think that something about fixating and trying to anchor ourselves on something that is fleeting will always leave us defeated; the passage of time will always win. This is a message that has rippled through out the U.K and beyond, with what’s been in the news recently- that, for a lot of us, draws on parts of our own lives, somewhat, making us reflect.

Wow! That got deep so quick! I don’t know but it’s something that I’ve thinking a lot about recently- that the volume of life left to pass in the timer is constantly shrinking. I say the above like I’ve aced and surrendered to the unknown, but that could not be any further from the truth. If we are going full on confessional mode-the unknown is my biggest fear.

I know the unknown has its sparingly exciting charms about it, like discovering a new dish(linguine is a recent for me and is all kinds of delicious) or exploring a new place (especially if disabled access guaranteed) and not knowing what you might find, or how a piece of work might take shape, like writing this, or the anticipation of what will happen next in Virgin River (new-to me swoonworthy series I have found on Netflix) that kind of thing. But the bigger stuff that plays on your heart strings and have unsettling tones is something that has me reach for the duvet.

For me summer as an air of nostalgia to it and gets me in a reflective mood. I toy with all of the unanswerable questions like ‘what ifs’ and ‘what could have beens’. I am also increasingly aware that in just a couple months’ time will be entering my last year of my twenties-I mean it would be a worry if I didn’t know my own age, good lord I would be more infantized than I am now, by others, as a disabled person- but that’s a whole other story. What I mean is the heart pounding thoughts of not having my ducks in a row, or not and being the person that my eighteen-year-old self thought I would be ten years on.

My teenage self-romanticized what young age adulthood would be like, I think most of us do at when we’re young. We want independence, we want to be seen in our own right and taken seriously. More personally- I thought that I would stop being infantilized but spoiler alert, I haven’t. I was naive to think disabled adults would be treated the same as non-disabled people.

As a disabled woman, the expectations which I am held to are different. You think I would be slightly relieved to be released the from expectations, but in fact I am annoyed at this. Why the hell should I get off lightly?

Do you remember egg and spoon races at school? Well my ball never fell off my spoon… confused? You would be right to. No it’s not that this activity that magically calmed my tremors, in a strange contradictory technique, it actually made them more aggravated. The truth was that the ball was stuck to my spoon as on its own the ball would fall of within two seconds. I did feel bad for cheating- if it’s any consolation I would always come in one of the last places-, but I guess my teachers just wanted me to feel involved somehow and that was their way of doing this.

My adult self is spilt in two about this scene on the one hand it allowed that kid who was the only physically disabled kid in her primary school not to be left out and feeling the odd one out. However, the other part of me looks at the message this sends out for the bigger things- that disabled people goes through life, and must be treated differently. Yes in some respects we do navigate the world that deviates from non-disabled people i.e some of us need an extra pair of hands for certain activities, or accessing a building via a ramp and not a staircase. This is only seen as different because society views it like this, not incorporating this into the mainstream. Another message from this says that disabled people cannot be seen to drop their ball. Because society views disabled people with a fragile lens, and so to everything they can not to ‘let’ us break, no matter the cost, cushioning us from the world. And also because ‘dropping the ball’, so to speak, would go against that other bizarre narrative that holds disabled people on a pedestal (goody- two-shoes type thing ) and says that disabled people couldn’t possibly fail and oversee our humanness and need to fail-and not being over or under berated for this- not that one should ever be judged for their failures.

So if we use the analogy of the egg and spoon- us, disabled people, being the egg, the spoon being the rest of the world, we need the glue, being the stereotypes or ideas about disabled people, that holds the egg (or us) in one fixed position to be eroded and let us be trusted and encouraged to just be . We need to be seen as humans, that can fail.

I digress. As I have written soo many times before it took me years to speak openly about my disability, unlike now whereby I could write about disability till the cows come home! I wonder if I was more willing to embrace my disability sooner where would I be? Would it have led me to taking different pathways? Of course, I will never know the answers to these questions and this pattern of thought isn’t helpful either. It’s an exercise though I’m sure pretty much everyone knows the mechanisms of, which may include pondering over what another life led could have looked like, missed opportunities, saying no rather than yes or vice-versa perhaps even mulling over past regrets. Still, this reflective practice will be unique to everyone who does this.

I don’t think there is any definitive resolution to these woes, as I think it is something that is naturally reoccurring and is a part of what it is to be human But I think in these moments of thinking back, growing quite and almost yearning for time gone by, we can’t let these times be all consuming and keep us fixated on the past.

So as we approach the end of September, the end of summer and the start of autumn, instead of trying to keep a hold of what is moving away from us, to try and release the grip around this. As I said above time will always win, and as much as we can feel defeated we can’t always perceive this character as an enemy. The time we have at this very moment can be used in any way we like-how cool is that. How we use it, is up to us!

I hope this has provide food for thought for you as we transition to the next season.

All my love XX

Posted on

Come in and sit down…

Image description: Lots Bluebells in a wood and tall trees in the background

Dear Reader,

It’s way over a month now into spring now, with a whole season having past with my beloved angel in the sky.  The feel and the sense of loss hasn’t grown old, it still feels fresh.  I’m not sure if its rawness will ever fade. I don’t think it can. I would like to think that it is how we remember and keep alive those who have gone before us, that can give a sense of comfort and that they are in a some way still around. This is a note that I left on last time I wrote on here.

If you have read my blogs before, you may have noticed a slight emphasis I have on time. Time is something that I think a lot about. Whether it’s thinking about what time give or steals, how we occupy  time, how we wished time was like, the longing to speed time up or down, the memories that time has given us, the imaginations  which we experience if time had gone in a different direction and thinking about how we want the future time to look. I started this blog post saying how we have entered the next season in the year and what this have meant for me, with a huge absence being felt, that has come with it lots of reflection and trips down memory lane.

A few weeks ago I shared on Instagram the tongue twister that Dad used to say “Come in and sit down and don’t be outside looking in at the people inside sitting down looking out.” This was one of the things that kept coming back to me. It was one of his favorite things to say when I was a child. I remember laughing as Dad would say this phrase at such speed, trying to keep up with what was being said as I framed this in my mind. I always knew what was coming when he would start this tongue twister, “Come in and sit down,” taking a slight pause before he would  say the rest, though I would always be captivated as to what was to come next. I think this is why this memory is soo vivid because of how joyous such times were.

I have recently given more thought on what this tongue twister could actually mean, looking more closely at this phrase. For me it asked for division to end, or to start to close this gap. To stop looking on. To stop judging others. To join others. To sit with others.

When people see others who are different from themselves, they can cast them as outsiders and treat them unfavorably. They stand on the outside passing judgement, without getting to know them yet simultaneously thinking that they know everything about them.  They have listened to the stereotypes and words that have been associated with this difference and run with it, without ever getting to know the person and challenging their views. Here, I am talking about disability and the way that disabled people are seen-because that is what I have experienced and is something that is close to my heart.

It has been considered okay that disabled people have been viewed in this way. On the back of this, disabled people have had to fight to be seen, protest for their rights and, in one way or another, prove their humanness (even though we really shouldn’t have to). Sometimes though this is still not enough, as people have a hard focus on what they have been taught.  They are maintaining their distance, unwilling to let go of out of date/never in date ideas, looking through a metaphorical window from another room. Meanwhile we are over here pent up with fury and frustration at such judgment, wanting  to smash down that window and whatever is reflecting back at them and ask them just to dump the prejudged ideas that they have and to get to know us.

Now more than ever, this idea of disability needs to be removed that sees disabled people as less than, which could prevent adverse behavior from taking place.

Keeping the momentum going on spreading disability awareness, however hard it can get, is crucial in order for change to happen. On them not so easy days and going under a shell feels more comfortable, this is when we need to resist from hiding and say what is on our minds.  The reminder of Dad’s tongue twisters has been a massive pull for me, especially on them wobbly days.  It made me stronger and awake to do what I can to raise the rights and equality disabled people however big or small-to make passing judgement less of a thing. To encourage others to listen to what is being said. To create thinking points for others that makes them ask ‘What if it was me?’.

So, as Dad would say, come in and sit down and don’t be outside looking at the people inside looking out.

All my love XX

Posted on

Autumn Sunshine

Photos in this post were taken by my beautiful sister, she can be found @thewanderingmermaid_xox

Dear Reader,

This time of year, many of us experience the all to common and perhaps overly thought ‘summer blues’; long hazy days are shortening, day trips in the great outdoors are more depended on ‘weather permitting’ and if we do decide to go we make sure we have an umbrella or a coat or something warm or anything we think we might need ‘just in case.’ We think the best and brightness days of the year are mostly behind us, wishing for summer to come back sooner than scheduled!!

But can I let you into a secret?? As well as summer I also love autumn! There is so much excitement in a new season; different things to do, different pace of life (maybe you have exciting things coming or may it time for you to have a little peaceful recline), different atmosphere. More noticeably nature shows us how change can be so very wonderful; the colour of the leafs turning from vibrant green to golden brown and shades of purple, the fresher, the fresher air making you feel more revitalised, the crunchy sound as you walk on the many fallen leafs on the footpath and you being an expectant witness of an elegantly falling leaf as it finds its place on the ground. The latter imagery of autumn may bring about an air of sadness and of loss with the idea of things ending, but, like everything, there is ALWAYS a flip side; falling leaves demonstrate the need for something new.

2017-09-28 12.47.49_1506599446887

The above quote beautifully captures a definition of autumn and connote that it does need to be so melancholic: nature, like humans, is a process of continual growth, shedding those things which do not serve this growth in order for more flourishing acts to take place-for nature this means developing its hypnotising colours ready to display them in spring and for humans this means developing in our strengths so that we can radiate our vibrancy. So autumn acts, metaphorically, as a backdrop for personal growth. Identifing the things you need to let go of is diffcult, thinking those are the very things that will keep you safe but actually they are keeping you captive. What is it you want to develop? What is it you need to let go off in order for this growth to take place? The next time you take an autumn walk and see leaves fluttering in the air think of the things you want to let go of and imagine they were the very leaf that passed you by. Breathe and let go. Enjoy the autumnal landscape and all the beauty it has to offer!! Redefine YOUR autumn!!

All my love XX