Four reminders

Rebecca, a white woman with brown hair, is sitting in her wheelchair
Image description: Rebecca, a white woman with brown hair, is wearing a pink and orange closed buttoned cardigan and pink trousers and shoes. She is sitting in her wheelchair that has peach spoke guards with multicolored butterflies dotted around on it. She is on a bridge with a lake running underneath

Dear Readers,

Woooo! It’s been a very long while since I wrote on here! In fact the last time I wrote on here we were transitioning from summer to autumn and now a whole other season has passed.

The reason. Well really, I have no excuse only to say that I’m not a very good juggler! But for a while now I have been itching to get back to blogging things and today is that day!

I want to write here, a few little notes for both you, and also I, to keep moving forwards or even to how we might go about being at ease with where we are- an underestimated thing and something I find personally hard to do. I tend to overly self-access looking for things I’ve missed or not executed as well as I should have or what’s next (attempting to ensure that the next thing leaves no room for errors). I know sometimes we can get ourselves in to a slump in one way or another and the other day I thought about what are those things that help me, and I wanted to write them here.

So, here goes  (btw these.. ‘tips’ are just me thinking out loud- so use, don’t use, add remove or even ignore.)

Do more of what you love and reframe from internalizing ableism

A lot of us have a guilt thing around pleasure and feel like we need to ‘earn’ enjoyment. The contents of, and how much, enjoyment we ‘allow’ ourselves to have will be measured by how much we’ve ‘worked for it.’  We have become our own unnerving headteacher that everyone dreads (Matilda’s Mrs. Trunchball  type).

As a disabled person who needs more time to do things day-to-day, I feel sometimes I should be doing twice as much in order to seek reward. Though we know this thinking is nonsense, playing into that ableist view, and that everyone goes at their own pace. So for those of us that identify as disabled or chronically ill this is a reminder to not chew on ableist words. You deserve, we deserve, just as many ‘nice’ moments as non-disabled people

It could be spending time with family and friends, exploring new places, reading a good book without thinking of what we could be doing or anything else that puts a smile on our hearts.

Comparison’s a thief

We don’t have to look far before we find that we are pitting ourselves against someone or something else doing something better, or leaves us, in whatever way, feeling less. I mean we all like to push ourselves and make improvements if we want. But it can also make us overly self-criticize, which can stop us on our tracks.

So how can we stop this? I don’t think there’s a definitive answer. But I do think a part of this is about being more aware when we are comparing ourselves and that the thing that we are comparing ourselves to something that is bigger and complex than what we are perceiving. Social media is a great example of comparing ourselves to someone else’s photos, status updates and snippets of their lives. But the same people also have parts that they choose not to share and are more than likely doing the same- comparing themselves to another person.

So we need to try to prevent ourselves from going down the rabbit hole and just remember that what we think is not the complete story and that everyone is just trying their best, including ourselves.

Connection is key

Humans are social beings. The amount of which will vary though, with each individual having their own unique social battery. Some peoples’ runs flat quickly if they socialize too much and need time away to charge, while other social batteries can be sustained and even be fueled by socializing.

I don’t want to sound greedy here, but I think I’m a bit of both. Sometimes i just need space and other times being with others is more than a want, but a need. I believe that perhaps our social battery is dependent on how and who we are spending it with.

No matter which way we flip I think that when we are not feeling our best a lot of us will turn to a trusted person or people in our lives and also when things are going well.

Loved ones can always energize me just by being with them…. I hope this can be the same for you too and if not let this be a reminder that it’s okay to step away and reconnect with yourself.

Get out of your own way!

Okay, this is another cliché but it true. We spend so much time thing about What ifs and worrying and talking ourselves out of things that in the time which we are doing all that, we could have done the things that we are putting off. This is a whole lot easier saying than actually doing, but by trying to be more of a doer we can break the habit of sabotaging ourselves. So before you completely talk yourself out of doing something-just go for it!

These are a few things that help me get out of my own head sometimes. I hope these can help you too.

All my love XX

Disabled Expectations Among Other Things

Image description; Rebecca a white woman with brown har, wears a pink jumper khaki green jeans , a purple scarf and rainbow shoes . She sits in her wheelchair that has peach spoke guards with multicoloured butterflies dotted around on it.. Rebecca is on a bank by a lake.

Dear Reader,

I started writing this post early in September and it strangely took me a while to form my thoughts. Whilst I speak about the changing of seasons-summer to autumn-, I think some of the reflections I make can be applied, somewhat, to any time, to one’s own personal seasons too. This is why I have left the wording as it is. I have truly enjoyed losing myself and discovering as I wrote this piece. And so I hope you are able to go with me on this and also enjoy this read.

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September sees the last utterings of summer. The shortening of length of light by a minute each day, as September ages. indicated that this warm season is coming to a close. Some of us grow back down into routines, after a period of perhaps adventure or a simple pause from the daily workings, if only a while.  Maybe the sun, radiating the last of its warmer rays, is soothing us back into our everyday, or maybe trying to echo an element of hope, if it didn’t have that sparkle that you thought it would have- that everyone says it has.

For some of us summer is the season where life seem the most vivid and has an abundance of colour and everything feels that bit more possible…rose-tinted glasses much? I think so. How many times have you heard recently the phrase ‘holding on to summer’? I know I’ve heard this quite a few times in recent weeks. Don’t get me wrong we all want to spend times in the warmth of the sun, but I think that something about fixating and trying to anchor ourselves on something that is fleeting will always leave us defeated; the passage of time will always win. This is a message that has rippled through out the U.K and beyond, with what’s been in the news recently- that, for a lot of us, draws on parts of our own lives, somewhat, making us reflect.

Wow! That got deep so quick! I don’t know but it’s something that I’ve thinking a lot about recently- that the volume of life left to pass in the timer is constantly shrinking. I say the above like I’ve aced and surrendered to the unknown, but that could not be any further from the truth. If we are going full on confessional mode-the unknown is my biggest fear.

I know the unknown has its sparingly exciting charms about it, like discovering a new dish(linguine is a recent for me and is all kinds of delicious) or exploring a new place (especially if disabled access guaranteed) and not knowing what you might find, or how a piece of work might take shape, like writing this, or the anticipation of what will happen next in Virgin River (new-to me swoonworthy series I have found on Netflix) that kind of thing. But the bigger stuff that plays on your heart strings and have unsettling tones is something that has me reach for the duvet.

For me summer as an air of nostalgia to it and gets me in a reflective mood. I toy with all of the unanswerable questions like ‘what ifs’ and ‘what could have beens’. I am also increasingly aware that in just a couple months’ time will be entering my last year of my twenties-I mean it would be a worry if I didn’t know my own age, good lord I would be more infantized than I am now, by others, as a disabled person- but that’s a whole other story. What I mean is the heart pounding thoughts of not having my ducks in a row, or not and being the person that my eighteen-year-old self thought I would be ten years on.

My teenage self-romanticized what young age adulthood would be like, I think most of us do at when we’re young. We want independence, we want to be seen in our own right and taken seriously. More personally- I thought that I would stop being infantilized but spoiler alert, I haven’t. I was naive to think disabled adults would be treated the same as non-disabled people.

As a disabled woman, the expectations which I am held to are different. You think I would be slightly relieved to be released the from expectations, but in fact I am annoyed at this. Why the hell should I get off lightly?

Do you remember egg and spoon races at school? Well my ball never fell off my spoon… confused? You would be right to. No it’s not that this activity that magically calmed my tremors, in a strange contradictory technique, it actually made them more aggravated. The truth was that the ball was stuck to my spoon as on its own the ball would fall of within two seconds. I did feel bad for cheating- if it’s any consolation I would always come in one of the last places-, but I guess my teachers just wanted me to feel involved somehow and that was their way of doing this.

My adult self is spilt in two about this scene on the one hand it allowed that kid who was the only physically disabled kid in her primary school not to be left out and feeling the odd one out. However, the other part of me looks at the message this sends out for the bigger things- that disabled people goes through life, and must be treated differently. Yes in some respects we do navigate the world that deviates from non-disabled people i.e some of us need an extra pair of hands for certain activities, or accessing a building via a ramp and not a staircase. This is only seen as different because society views it like this, not incorporating this into the mainstream. Another message from this says that disabled people cannot be seen to drop their ball. Because society views disabled people with a fragile lens, and so to everything they can not to ‘let’ us break, no matter the cost, cushioning us from the world. And also because ‘dropping the ball’, so to speak, would go against that other bizarre narrative that holds disabled people on a pedestal (goody- two-shoes type thing ) and says that disabled people couldn’t possibly fail and oversee our humanness and need to fail-and not being over or under berated for this- not that one should ever be judged for their failures.

So if we use the analogy of the egg and spoon- us, disabled people, being the egg, the spoon being the rest of the world, we need the glue, being the stereotypes or ideas about disabled people, that holds the egg (or us) in one fixed position to be eroded and let us be trusted and encouraged to just be . We need to be seen as humans, that can fail.

I digress. As I have written soo many times before it took me years to speak openly about my disability, unlike now whereby I could write about disability till the cows come home! I wonder if I was more willing to embrace my disability sooner where would I be? Would it have led me to taking different pathways? Of course, I will never know the answers to these questions and this pattern of thought isn’t helpful either. It’s an exercise though I’m sure pretty much everyone knows the mechanisms of, which may include pondering over what another life led could have looked like, missed opportunities, saying no rather than yes or vice-versa perhaps even mulling over past regrets. Still, this reflective practice will be unique to everyone who does this.

I don’t think there is any definitive resolution to these woes, as I think it is something that is naturally reoccurring and is a part of what it is to be human But I think in these moments of thinking back, growing quite and almost yearning for time gone by, we can’t let these times be all consuming and keep us fixated on the past.

So as we approach the end of September, the end of summer and the start of autumn, instead of trying to keep a hold of what is moving away from us, to try and release the grip around this. As I said above time will always win, and as much as we can feel defeated we can’t always perceive this character as an enemy. The time we have at this very moment can be used in any way we like-how cool is that. How we use it, is up to us!

I hope this has provide food for thought for you as we transition to the next season.

All my love XX

It’s a double whammy!

? It’s a Happy double whammy today?? Happy Magic Monday and also Happy Sticker Day ?

I love me some fun stickers to spruce up my calendar… it’s adds a inspiration for the month (as any rainbow unicorn hearts or little positive words would ?)? Sooo get fun when your organising it might takes the edge of things that feel a little weighty, especially at the start of the year!

Also my writing is a little different than most but that’s ok. I can understand what I have wrote and that what matters, right? If you have a similar writing character, don’t let it stop you from creating your writing artwork ???

One Step at a Time

?Everything takes time. Focus this moment ?

I hope you find a little bit of magic in your Monday ?✨?

Illustration by @stacieswift

Image description: An illustration of rainbow is in the centre. With white writing underneath that says “ONE STEP AT A TIME” with a white line drawn below this sentence. The background is bright pink. This illustration is by @stacieswift

You Can!!

?✨Happy Magic Monday my Fabulous Ones ✨?

This a reminder at the start of the week, that you, yes YOU, can do anything ?? Turn them thoughts into reality and make yourself proud???✨

Illustration by @soolooka

[Image description : There are two illustrations of plant pots. On one plant pot there is writing that reads ‘I can’t do it ‘ with a small bud. The other pot has writing on it that says ‘I can do it’ with a tall flower with smiley face drawn on the flower head. There is an illustration of a person turning towards the pot with the flower with a magic wand in there hand. Above this illustration reads the words ‘everyone has magic power to make a thought grow’. And underneath reads ‘make sure you choose the thoughts that make your life better’. The background of this illustration is purple. This illustration is by @soolooka]

Self-belief

?✨ Happy Magic Monday My Fabulous Ones ✨?

This is your Monday reminder, via the wonderful @stacieswift, to always try and go after what you believe✨✨ It is not a easy thing to do at times, but it is always worth it! Believe in your lovely self ???

[Image description: the word ‘HAVE’ is printed in white in the centre of the image. Underneath is the word ‘COURAGE ‘ written more bigger and bolder. Underneath reads italic words in brackets ‘EVEN IF YOU FEEL A BIT WOBBLY AT FIRST’. The background of this illustration is pink. This illustration is by @stacieswift]

Stay in your own lane

?✨ Hhhaaappy Magic Monday MyFabulous Ones ✨?

Live life how you want and don’t be held back from doing this?? No one is living your life but YOU! Free yourself child ?????

This wonderful illustration is by @helloitskayley ?

Love Yourself

?✨? Happy Magic Monday my Fabulous Ones ?✨? It’s important to just be who we are and not throw the light away from ourselves- embrace it!? I love the fact that no one has my wobbly walk ! And it’s not up for negotiation ?

What do you love about you? Feel free to share, if you want to of course! Let’s kick this week off with a bit of self loving???

Be bold. Be you

✨?✨ Happy Magic Monday my Fabulous Ones ✨?✨

Just an important reminder today to keep doing things for you, without the need to impress or hide behind this ? Be bold, be you ❤️

Illustration by @naturallifez?

Create your own rules

✨? Happy Magic Monday My Fabulous Ones?✨

This is a little reminder from the brilliant @wonder_doodles to step out of conventions and do things our way ? This illustration also speaks to the child in me who was aways told to “Choose the colours for your picture “ rather than letting me just go ahead and colour ( my shaky hands would mean my colouring would over flow the lines, which did not go down well with those looking for ‘perfection ‘) , it goes without saying it took a while to like making art again, and it something now that I love!? Never be put off by or be dictated to about how to do or not to do something – make your own rules ????? Thank you @wonder_doodles for this reminder ?